All Party Parliamentary Group for Children Who Need Palliative Care

An All Party Parliamentary Group (APPG), chaired by Dr Caroline Johnson MP Sleaford and North Hykehamand  Catherine McKinnell MP Newcastle-Upon-Tyne North is undertaking an enquiry into the extent to which the government is meeting its end of life care choice commitment for babies, children and young people in England.

The inquiry’s terms of reference include:
• Whether children in England with life-limiting and life-threatening conditions are currently able to exercise choices over the palliative care they need
• What barriers are preventing children from making these choices – and preventing services from offering them
• What the opportunities are for improving the extent to which children and families can make these choices.

The APPG is asking for written and oral evidence and is particularly keen to hear from:
• Young people with life-limiting and life-threatening conditions (who can make a submission to the inquiry by completing the short survey at https://www.surveymonkey.co.uk/r/APPGCPCchoice if they prefer)
• Families of babies, children and young people (who can also make a submission to the inquiry by completing the survey at https://www.surveymonkey.co.uk/r/APPGCPCchoice)
• Children’s palliative care providers, including individual professionals and organisations
• Commissioners (statutory planners and funders) of children’s palliative care
• Government departments, NHS England and NICE.

Please contact james.cooper@togetherforshortlives.org.uk for more information about the inquiry or visit www.togetherforshortlives.org.uk/appg