A Palliative Care Journey: Conference 20th May 2016

Highlights from A Palliative Care Journey: our first National Children’s Palliative Care Conference 

Where are we going? National priorities and what the future will look like for children’s palliative care – Hilary Cass

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Are we nearly there yet? Anticipatory grief: the impact starts from diagnosis

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Parallel planning just the ticket! When is the right time to refer to palliative care teams – Lisa Kauffmann

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Travelling towards an uncertain future Impact of having a child with a life limiting condition on family life – Sarah O’Sullivan and Karen Robinson

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The bumps in the road – Barriers to timely discharge – Panel discussion chaired by Lynda Brook

Outcomes of Play Inquiry and Play in Palliative Care – Anne Chessbrough and Lynn Grayson

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Accessing and finding quality family information – Karen Robinson

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Using simulation in palliative care education and training for parents and professionals – Anton Mayer, Lesley Fellows and Michaela Barnard

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Breaking down social cultural and religious barriers to access palliative care – Naved Siddiq and Katrina McNamara

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A useful map? – Advance Care Planning and Advance Care Plans; pitfalls and progress – Lynda Brook

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The final stretch How can we ensure appropriate, safe, flexible and sustainable support for children with palliative care needs 24/7? – Panel discussion chaired by Lisa Kauffmann

Providing 24/7 palliative care support: the Merseyside and Cheshire Children’s End of Life Project – Helen Dunning, Lesley Fellows, Jan Sutherland Oakes

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