Who we are:
The Northwest Children and Young People’s Palliative Care Network brings together representatives of babies, children and young people with palliative care needs and their families, commissioners and providers of children’s
palliative care from NHS, Voluntary sectors, Social Services and Education, across primary, secondary and tertiary care with the aim of improving co-ordination availability and delivery of palliative care. The Network comprises three Zonal Networks representing Greater Manchester, Cumbria & Lancashire and Merseyside & Cheshire respectively.
“All babies, children and young people with life threatening and life limiting conditions, and their families will have access to the highest quality of supportive and palliative care throughout their journey from diagnosis to bereavement or transition to adult services. This will be provided in the most appropriate place according to needs and wishes of the child and family, regardless of geographical location, cultural social or ethnic fac
tors. There will be full integration of services with seamless transition of care between primary, secondary and tertiary healthcare settings and close partnership between healthcare, education and social services care.”
The main focus of the Northwest Children and Young People’s Palliative Network is babies, children and young people from 0 to 19 years but also includes antenatal diagnosis and young people aged 19 and over in transition to adult services. We use the term “child” to refer to any baby, child or young person within this broad age range unless otherwise specified.
Remit and functions of the Northwest Children and Young People’s Palliative Care Network include:
- To inform strategic development for children’s palliative care services in the Northwest
- To develop and implement procedures for feedback and performance monitoring in order to oversee the delivery of the strategy for children’s palliative care across the Northwest
- To act as an expert resource to the Strategic Health Authority board (or equivalent regional body) on issues relating to palliative care for babies, children and young people in the Northwest
- To ensure appropriate education and training for professionals working in children’s palliative care across the Network